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I began this practice in 2020 to help children and young adults with postural orthostatic tachycardia syndrome (POTS), dizziness and syncope, autonomic dysfunction associated with mitochondrial disorders, and other autonomic nervous system problems find and receive the care that best addresses their needs.

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This work is called "medical advocacy."

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My consultation is wholly patient-centered and patient-directed. It involves advocacy, personalized medical research, and communicating with you (and family members, for pediatric patients) each step of the way.

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I will be a physician acting completely on your behalf, your own personal consultant, researcher and advocate, working to help you gain the information and authority you need to be in complete charge of your care. I will not be assuming your care, nor will I be treating you, but I will actively help you get the best possible treatments.

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I look forward to working with you, with the shared goal of getting you well again and reclaiming your life.

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Medical advocacy

is a unique consultation method that is wholly

patent-centered and patient-directed.

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Jeffrey R. Boris, MD LLC

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Patients with dizziness, syncope, POTS, and mitochondrial disorder-associated autonomic dysfunction  can be confusing to a lot of doctors. They often don’t feel comfortable taking care of patients with these symptoms. Getting a complete history can take a lot of time, something many doctors don’t have much of anymore. The symptoms and concerns associated with POTS especially can also be diverse and challenging to specialists who only think a certain way, or within the confines of a certain body system (like the nervous system, cardiovascular system, etc.). A lot of doctors don’t want to care for patients with POTS. Some don’t even believe that POTS exists. Some blame the patient (or the parent) for the symptoms.

 

Having cared for over 2000 patients with autonomic dysfunction in my career, I understand that this is a medical problem. We don’t have all the answers for why they occur, but they’re not imaginary. You,  patients and families, have better things to do than to divert your lives into handling all of the symptoms of an autonomic disorder. These issues can seem to be annoying, scary, and intrusive problems that interfere with your lives. All too often, in a medical situation, the family members sit helplessly on the sidelines, wanting to help, but not quite knowing how (and not being given a role by the physician). As a pediatrician, my orientation is strongly towards involving family members as much as possible. I encourage direct participation each step of the way.

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